The Data Collection Process

All data within the OPTN database is collected via an online Web application called UNet^sm. Transplant professionals from hospitals, histocompatibility (tissue typing) laboratories, and organ procurement organizations located across the country use the application to perform the following tasks:

• manage their list of waiting transplant candidates
• access and complete electronic data collection forms
• add donor information and run donor-recipient matching lists
• access various transplant data reports and policies

The data collection forms comprise the largest percentage of the data collected in the system. The 26 different form types combined contain more than 3,500 data fields. Below is a list of the different forms types and links to the list of fields collected on each form.

Data Collection Forms

These forms are provided for information purposes only to show what data elements are currently collected. Transplant centers and organ procurement organizations enter data into the OPTN database via the Internet using the secure Web-based application UNet^sm.

• Transplant Candidate Registration Form includes waiting list data as well as other clinical and organ-specific information collected prior to the transplant. There is a separate adult and pediatric form for each organ type:
  Adult: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, Heart, Lung, and Heart/Lung.
  Pediatric: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, Heart, Lung, and Heart/Lung.
• Transplant Recipient Registration Form includes the patient status at discharge, pre- and post-transplant clinical information as well as treatment data. The form is generated when the patient receives a transplant and is removed from the waiting list. There is a separate adult and pediatric form for each organ type:
  Adult: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, Thoracic-Lung, Thoracic-Heart, and Thoracic-Heart/Lung.
  Pediatric: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, Thoracic-Lung, Thoracic-Heart, and Thoracic-Heart/Lung.
• Transplant Recipient Follow-up Form is generated six months post-transplant (excluding thoracic) and on the transplant anniversary for every living organ recipient with a functioning graft. It includes patient status, clinical and treatment information. There is a separate adult and pediatric form for each organ type:
  Adult: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, and Thoracic-Heart/Lung.
  Pediatric: Kidney/Pancreas, Kidney, Pancreas, Liver, Intestine, and Thoracic-Heart/Lung.

Adultor Pediatric Post Transplant Malignancy Form is generated after a malignancy has been reported on the Transplant Recipient Follow-up.

Recipient Histocompatibility Form collects tissue typing and crossmatch information for the recipient post-transplant.

Deceased Donor Registration Form is to be completed for all consented but not recovered donors and recovered donors.

Living Donor Registration Form collects data for all living organ donors.

Living Donor Follow-up Form includes patient status and clinical information collected at intervals of six months, and one year post-transplant.

Donor Histocompatibility Form collects tissue typing data for deceased and living donors.

OPTN Membership Forms

These forms are provided for information purposes only to show what data elements are currently collected. Members should contact the Membership Services Department to discuss the submission of any of these forms in order to ensure that the appropriate documents are being completed.

New Transplant Program Application

Designated Transplant Program Application

Independent OPO Application

Histocompatibility Laboratory Application

Change of Personnel Application

Medical/Scientific Member Application

Public Organization Member Application

Business Member Application

Individual Member Application